When fragile skin makes wound care part of everyday life, dependable support and access to the right supplies matter.
Epidermolysis Bullosa (EB) is a group of rare genetic conditions that cause the skin to be fragile and blister easily. Even gentle friction or minor trauma can cause the skin to shear, creating wounds that require ongoing care.
There are several types of EB, and each affects the skin differently. Some forms are milder, while others are more severe and involve broader challenges. What they share is the need for careful, consistent wound care and access to the right supplies.
EB is not one condition. Type, subtype, and severity can influence skin involvement, wound burden, complications, and the supplies a patient may need. Select a type to expand the clinical overview.
The most common form of EB. Blistering usually occurs within the outer layer of the skin and is often triggered by friction, heat, or minor trauma. Severity can range from localized blistering of the hands and feet to more widespread disease.
Blistering occurs below the basement membrane due to abnormalities involving type VII collagen. Repeated injury and healing may lead to scarring, contractures, fusion of fingers or toes, and chronic wounds. DEB may be inherited as either:
Different genetic changes can cause different types of Epidermolysis Bullosa. Some forms can be passed down from one parent, while others occur when a child inherits a changed gene from both parents.
EB can also appear in a family with no known history of the condition.
Genetics can help explain the type of EB, but every person’s experience is different. Wound care and dressing needs should always be based on the individual’s skin, wounds, comfort, and daily needs.
For many people living with EB, wound care is not a one-time event. Blisters and wounds can appear regularly, and managing them is part of a daily routine.
New blisters can form from everyday activities, making wound care a regular part of life rather than a one-time treatment.
Consistent access to the right dressings and supplies is essential to keep up with daily care routines.
Products must protect fragile skin without causing further damage during application or removal.
There is no single wound-care product that works for every person or every wound. Product selection depends on the type of wound, its location, drainage, the individual’s skin tolerance, and personal preference.
EB wound care works best when patients, caregivers, and clinical teams work together. Each plays a distinct role.
Manage daily care routines, observe changes, and communicate needs to the care team.
Diagnoses, prescribes treatment, selects products, and monitors healing progress.
Helps navigate supply access, insurance coordination, and delivery so care can continue without interruption.
Gaps in supply access can disrupt care routines and add stress for patients and caregivers. Clara Care helps reduce that burden by coordinating the supply process from order through delivery.
Working as a team to help prevent gaps in the products you rely on.
Supporting insurance verification and clinical documentation review.
An assigned nurse you can securely text, call, or email whenever you need support.
Independent organizations can provide education, advocacy, research updates, community connections, and additional support for people and families affected by Epidermolysis Bullosa.
Provides direct-to-patient programs, education, advocacy, wound-care resources, and support for individuals and families living with EB.
A global nonprofit focused on funding research to develop treatments and ultimately cure Epidermolysis Bullosa.
Supports the EB community through awareness, family resources, fundraising, and support for EB research and organizations.
Learn how the right products work together to protect fragile skin, manage drainage, and support the care plan your healthcare team prescribes.
Our nurse-specialist team is ready to help you navigate the supply process.
Beyond Supplies: Empowering Care Through Compassion, Support, and Expertise.
Educational information only. This microsite does not provide medical advice, diagnosis, or treatment recommendations. Product and treatment selection should be directed by your healthcare team. Always follow your physician or nurse's care plan. Clara Care does not collect protected health information (PHI) through this form. Patient documents should be sent through Clara's secure document upload process.